SURVEY: CLOSING THE EVIDENCE GAP ON PUBLIC ATTITUDES TOWARDS GENETIC DATA HANDLING

While “data sharing” for biomedical research is currently very high on the agenda of funders and policy makers, there is a dearth of evidence on how people want their genetic and other health data to be used, by whom, and on what terms. A group led by Anna Middleton at Wellcome Trust Sanger, Cambridge, designed a survey to help close this evidence gap. Here is the link to the survey: