New podcast episode: Biobanking Development – Amsterdam UMC’s International Freezer Challenge Win and Carbon Literacy

“I learned that health care has a share of 6 to 8% in our total energy consumption – equal to the aviation sector. Although as health care researchers, we need to face this reality and act.”

This episode of the BBMRI-ERIC podcast goes behind Amsterdam UMC’s recent win of the International Freezer Challenge to explore biobanking sustainability and carbon literacy.

Jörg Hamann, Head of the Biobank and Management Committee member for The Netherlands‘ BBMRI National Node, tells Saba Abdulghani, BBMRI’s Head of Biobanking Development, about the significance of the win – Europe’s first hospital to achieve the award.

Saba is also joined by Phil Korbel, Co Founder and Director of Advocacy at the Carbon Literacy Project, who will be working with BBMRI to develop a certified Carbon Literacy Toolkit. This initiative will form part of the Green Label that will enable Biobanks to demonstrate recognised sustainability credentials.

BBMRI-ERIC Podcast

“Without the patient citizen’s data, there is no future for research.”

Episode 25 takes you to a workshop on information points for citizens under the European Health Data space. The workshop is jointly organised under the EHDS2Pilot project by BBMRI-ERIC’s ethical, legal and societal implications team and the Spanish Research Council in Brussels – CSIC where the workshop is being held.

The project brings together 17 partners including health data access bodies, health data sharing infrastructures and European agencies with the aim to build a pilot version of the European Health Data Space (EHDS) infrastructure for the secondary use of health data – known as “HealthData@EU” – which will serve research, innovation, policy making and regulatory purposes.

The outcome is for the consortium to collaborate closely with the European Commission and their team working on developing the central services for secondary use of health data.

Why does communicating about EHDS matter?

Under EHDS, citizens will have an opt out right in Europe so they need to be made aware their data may be used outside the immediate healthcare context. EHDS has provisions for individual control of data. How much should you make citizens aware of the use of their data and opt out rights?

This is a major topic that is being debated in political spaces and across European health communities. That’s because, if you care about how your health data might be used for research, EHDS is relevant to you.

The podcast explores how best to communicate with citizens that their rights are taken seriously, that they can keep in control of their data and its use, and to fulfil the legal obligations under the EHDS regulation.

Join patient organisations, experts and policy makers as they discuss the varied concepts that exist in the EU. You’ll hear about successful initiatives for informing the public about ongoing data sharing activities, as well as understanding past communication failures to give you a better understanding of what will help foster the implementation of the upcoming EHDS Regulation.

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New podcast episode: Biobanking Development – Amsterdam UMC’s International Freezer Challenge Win and Carbon Literacy

“I learned that health care has a share of 6 to 8% in our total energy consumption – equal to the aviation sector. Although as health care researchers, we need to face this reality and act.”

“Without the patient citizen’s data, there is no future for research.”

Why does communicating about EHDS matter?

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