As part of the EvolveBBMRI project, a survey on Green Biobanking Environmental Challenges and Best Practices was conducted to engage National Nodes and their associated biobanks in a comprehensive mapping exercise. The survey aimed to identify and assess key gaps and challenges in the implementation and long-term maintenance of environmentally sustainable biobanking practices. This important […]
Strengthening Biobanks through Patient and Public involvement Webinar organised by the BBMRI-ERIC Stakeholder Forum Summary: Constant dialogue with patients, caregivers, and the public is a key guiding principle in biobanking and research. Yet, public and patient involvement, often referred to also as research participant involvement, has not become the usual practice in many biobanks. Often, […]
Save the date! The next ECRD will be held on 3 & 4 June 2026 in Prague and will be titled “Rare Diseases in a Changing & Competitive Europe: Shaping policies to address the unmet needs of people living with rare diseases”. The European Conference on Rare Diseases & Orphan Products (ECRD) is the largest patient-led […]
