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Home ELSI Knowledge Base

ELSI Knowledge Base

The ELSI Knowledge Base is our open-access resource platform containing information on ELSI-related matters relevant to biobanking. Here you will find practical guidance on specific ELSI topics. In need of ethical, legal, or societal guidance? Browse our articles below.

Our top picks for today

Topic

International data sharing: MTA, DTA

What to consider when drafting Material Transfer Agreements and Data Transfer Agreements.

Topic

Incidental Findings

Explore resources relating to the informed management of incidental findings

Latest content

Article

Ethics Advisors and Ethics Advisory Boards. Roles and Function in EU-funded Projects

This document provides guidance for the beneficiary to appoint an external independent Ethics Advisor or Board and to specify composition and mandate. The appointment of an Ethics Advisor or Ethics Board can be voluntarily proposed by the applicant in their application or can be obligatory as a result of the Ethics Review.

Article

Biobanking with children – Resources and Good Practices

Learn here about a participatory approach to biobanking with children

Article

DPIA Tools and Resources

Browse here our selection of DPIA tools and resources

Article

Minors’ Engagement

The Minors' Engagement as our ELSI Training Ground: An ELSI paradigm shift: RRI maturation with minors

Open filters

Topics

DPIAs (Data Protection Impact Assessments) (2) Biobanking with Children (2)

Challenges

Ethics Advisors and Ethics Advisory Boards. Roles and Function in EU-funded Projects Preparation of a new project: what to do with data? Responses to data requests How to manage personal data in a new project

Keywords

paediatrics (2)
ELSI (6)

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