The Code of Conduct for Health Research: A Resource in Turbulent Times?

Organised by BBMRI-ERIC

Industry – Academia – Healthcare professionals

CPDP, the Computers, Privacy and Data Protection 2018 conference is taking place in Brussels between the 24th and 26th January. We are pleased to announce that BBMRI-ERIC is going to host a session on the 26th between 8:30 and 10:00 a.m. in the La Cave room.

Chair: Michaela Th. Mayrhofer, BBMRI-ERIC (AT)

Presenter: Annelies Debucquoy, Belgian Cancer Registry (BE)

Speakers: Evert-Ben van Veen, Medlawconsult (NL); Anastassia Negrouk, EORTC (BE); Alastair Kent, Ambassador, Genetic Alliance (UK); other speakers tbc

The GDPR was influenced by contingent political priorities that risked creating unwanted effects on health research. The final result is acceptable, but many issues related to health research remain unanswered. The Code of Conduct for Health Research, born from a collaboration of more than 90 research organisations, aims at filling the gaps to guarantee data collection and sharing that enable and enhance health research while respecting patient/citizen rights. Experts and stakeholders will discuss the Code, underlining its added value and suggesting amelioration/critiques to it. The audience will have the chance to engage with the panelists and the Code’s authors.

• Providing the audience with a brief account of the specific data protection needs of health research;
• Discussing the procedural aspects how to submit a code of conduct under the GDPR (Art. 40);
• Engaging in a dialogue with the audience about what the Code of Conduct for Health Research should contain for both patients/citizens and researchers.

Click here to visit the CPDP conferences website.